Over the years, I have been deeply touched by the resilience and courage of a west Wichita family, the Delamores. I grew up attending church with Angie (Coffman) Delamore at St. Paul Apostle Catholic Church in Del City, Oklahoma. We lost touch over the years, but reconnected when our sons were babies over 12 years ago. Angie and I had both moved to the Wichita area, and before our mothers retired and moved to Kansas, they would drive up together from Oklahoma City to see their grandsons. Angie’s son JC was born July 1, 2004, exactly three months before my son Logan was born on October 1, 2004.
There are so many parallels in our lives.
I have been most deeply struck by the way our paths have diverged, however.
JC was diagnosed with leukemia when he was two years old.
All the years that we and Logan have been able to take for granted his ability to participate in sports, play freely with friends in the park or at the pool and enjoy Biking Across Kansas, JC has been valiantly coping with feeding tubes and central lines, bone marrow biopsies, surgeries, chemotherapy, spinal taps a bone marrow transplant, remissions and relapses.
Angie and her husband Scott have continually witnessed JC’s pain and suffering. As a mother, my heart aches to imagine what that must be like.
Throughout the decade since JC’s diagnosis, the family has lived with so much uncertainty, and their lives have been disrupted so many times by leukemia. The Delamores have faced each crisis with honesty, courage, unshakeable faith and resilience, living as absolute models of the JustWind philosophy, which acknowledges that life is full of challenges and can be lived with the highest quality when that fact is recognized and faced courageously. They do not seem to question why they have had to endure such suffering when others have been able to experience the milestones and adventures of a childhood without serious illness. Instead, they focus on treasuring each moment.
My urge to do something to help the family nagged me for years, especially each time I learned that JC had experienced a new relapse or crisis, but I didn’t act on it. Finally, when he relapsed this spring for the fifth time, after the family had enjoyed more than a year of remission following a bone marrow transplant from his dad, the nagging in my head and heart turned into the words of Colleen Patrick-Goudreau, a vegan outreach expert whom I admire, “Don’t do nothing just because you can’t do everything.” I kept hearing those words until I made the decision to reach out to Angie to ask her permission to organize a bike ride to raise money to help the family. Although she acknowledged that it is difficult to accept help, she gratefully gave me permission and said that this most recent relapse has left the family in a different position than they ever previously have been.
Virtually every medical option has been exhausted. They are currently staying in Maryland at the National Institute of Health, where JC is in the throes of an experimental treatment that does not promise a medical cure, but offers some hope. JC made the choice to participate in the study because he wants very much to experience as much as possible of all that life has to offer.
A fundraiser bike ride feels like the best way to use my strengths, experience, connections and passion to try to make some small difference in the life of this family.
I am organizing JustWind for JC: A Metric Century for 7 a.m., Saturday, August 12, 2017. It will start and finish in Andale High School parking lot at 700 W. Rush Andale, Kansas 67001. It will be a beautiful 62-mile ride on quiet, rural roads that I love to ride. Participants will experience three great small towns, two counties and two lakes and will have the opportunity to help the Delamore family with the limitless expenses associated with giving JC the best chance to live the life he loves.
Having been honored to be part of the Biking Across Kansas family since 1999, I know that cyclists are wonderful, generous people. Please join me for JustWind for JC if you are able and share this post and the event link with your cycling friends, as well as with others who may not be able to join us for the ride, but still have a desire to help. You may make a freewill donation and register for the ride here. Cash donations will also be accepted on the morning of the ride, and Team Delamore hoo rags (and, possibly, jerseys—stay tuned) will be available for purchase. Proceeds for the ride and hoo rag purchases will go directly to the Delamore family.
Once again, here is the link to register for the ride: https://www.eventbrite.com/e/justwind-for-jc-a-metric-century-tickets-35775030078